Albinism: Cultural and Ethnographic Perspectives in a Southern City
Abstract
This research is focused on the lived experience of individuals with albinism, both OCA (oculocutaneous albinism) and OA (ocular albinism). The cultural aspects of albinism are what will be primarily looked at during this study, as it is what the majority of the interview questions will be focused on. Following this will be a review of literature that is based on albinism, historical components, and how albinism has progressed over time. The main objective of this research is to aid in the reduction of stigmatization that is associated with albinism, further educate those who are unaware of the cultural complexities of albinism, and lastly to give agency to individuals with albinism through open ended interviews to share their lived experiences.