Document Type
Report
Publication Date
1-1-2012
Abstract
In 2010, the Registry and Surveillance System for Hemoglobinopathies (RuSH) pilot project was implemented by the Centers for Disease Control and Prevention (CDC) to collect state-specific, population-based data on people with sickle cell disease (SCD) and thalassemia. The pilot project is being supported and conducted in collaboration with the National Institutes of Health’s National Heart, Lung, and Blood Institute. Overall project goals include determining the number of people who have SCD and thalassemia and increasing knowledge and awareness about health care use and outcomes. Currently, seven states are funded to participate in data collection: California, Florida, Georgia, Michigan, New York, North Carolina, and Pennsylvania. In addition to collecting and linking their unique data to help reach these goals, the states also have planned and implemented health promotion initiatives designed to increase awareness about RuSH in the affected communities to aid in the data collection.
Recommended Citation
Centers for Disease Control and Prevention and Georgia Health Policy Center, "Strategies from the Field: Health Promotion" (2012). GHPC Reports. 55.
https://scholarworks.gsu.edu/ghpc_reports/55