Author ORCID Identifier
Regena Spratling: https://orcid.org/0000-0001-9807-3280
Syeda Ali: https://orcid.org/0000-0002-7263-0701
Melisa Faulkner: https://orcid.org/0000-0003-4483-670X
Iris Feinberg: https://orcid.org/0000-0002-2379-2501
Document Type
Article
Publication Date
12-14-2023
Abstract
Purpose
To test feasibility of the Creating Opportunities for Personal Empowerment: Symptom and Technology Management Resources intervention for caregivers of children who require medical technologies of tracheostomies and feeding tubes.Design and methods
Quasi-experimental one group design with measures at baseline and at 4 weeks. Intervention feasibility was tested from August 2019–June 2021, including recruitment, retention, and adherence, and caregiver satisfaction. Caregiver and child characteristics and outcomes were assessed.Results
Caregivers were enrolled (n = 22) and completed (n = 16) the study. Caregivers were primarily female (n = 21), were predominately Caucasian (n = 14, 64%) followed by African-American (n = 8, 36%), and Non-Hispanic/Latino (n = 18, 82%). Feasibility indicators of recruitment (92%), retention (73%), and adherence (100%) were satisfactory. Outcome measures of management of child's chronic condition, caregiver beliefs about managing their child's symptoms and medical technology, anxiety, and depressive symptoms remained stable. Caregivers agreed that the intervention was useful, easy to use, and acceptable, and had positive feedback.Conclusions
This is a feasible and acceptable intervention. With further development and efficacy testing, the intervention has potential for use and expansion to a larger population of caregivers of children who require medical technology.Practice implications
Children who require medical technology have multiple complex chronic conditions and complex care needs at home. This intensive and focused care is provided by informal caregivers who need education and resources for their child's care. This intervention addressed caregiver management of common symptoms and medical technologies of children in the home setting.DOI
https://doi.org/10.1016/j.pedn.2023.12.009
Recommended Citation
Spratling R, Ali SZ, Faulkner MS, Feinberg I, Hayat MJ. Enhancing caregivers self-management for their children who require medical technology: A feasibility study for the COPE-STAR intervention. J Pediatr Nurs. 2024 Mar-Apr;75:23-30. doi: 10.1016/j.pedn.2023.12.009.
Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 International License.
Comments
Originally published in Spratling R, Ali SZ, Faulkner MS, Feinberg I, Hayat MJ. Enhancing caregivers self-management for their children who require medical technology: A feasibility study for the COPE-STAR intervention. J Pediatr Nurs. 2024 Mar-Apr;75:23-30. doi: 10.1016/j.pedn.2023.12.009.